Sunday, 8 July 2012

Those Silly Salicylates

I mentioned in my last post that one of the things I was considering was a salicylate intolerance in Pixie. The list of symptoms associated with it are varied and numerous and a salicylate free diet is mooted by some to have positive affects on people with ADHD.

There are a number of things on the list that Pixie has. Obviously it may well be that he just 'happens' to have a multitude of unrelated, low-level health issues but equally there may be an all-encompassing reason for them. Having fibromyalgia myself, I know that a myriad of seemingly unrelated issues can (eventually!) be tracked back to an umbrella condition. With that in mind, we decided that cutting down on salicylates certainly wouldn't hurt.

The list of symptoms we're concerned about may be a mix of unrelated issues and the fact that Pixie is, y'know, three, , so I thought I'd track his progress here. The symptoms we think are related are these:

  • eczema (mild, but we can never quite get rid of it)
  • persistent cough
  • slightly darker and slightly paler patches on his forearms, as though the skin pigmentation is going awry
  • itchy, dry skin around his eyes, with red circles round them, that cream doesn't seem to get rid of
  • constant hunger
  • accident prone (honestly, I'm surprised he doesn't have brain damage by now, the amount of times he's walked into the same pieces of furniture!)
  • hearing without comprehension
  • slurred speech
  • stammering
Obviously if the salicylate intolerance isn't the cause then the symptoms won't get better over time. However, even if he is intolerant I'm expecting the symptoms to wax and wane before going completely, especially while we get to grips with what is and isn't 'acceptable' under the new regime. So I'm going to track the progress here.

We're currently at the end of day two and he's being surprisingly agreeable about the entire situation. He's started asking if he's allowed to have something before he eats it (which is brilliant!). The worst part is limiting his fruit and veg as he's a big fruit fan and we obviously want to keep him having a fresh, healthy diet! Because he goes to nursery for 3 half days a week he has 6 meals a week outside the home. I don't want to mess about with what he eats there on what's unsubstantiated theory at the moment so we're not going to ask the nursery to alter his food in any way yet. However, we'll keep an eye on any reactions he has on those days and take steps if necessary. I'm slightly concerned about the website I linked to earlier saying that caution needs to be exercised on reintroducing salicylates as anaphylactic shock may occur....I don't think that they'll be removed so completely (we're not currently changing his toiletries, for example) that him eating 'normally' at nursery will result in that though! Um, if anyone thinks they know different please get in touch before Tuesday morning!

I wasn't expecting to see any results this quickly but what is a little bit galling is that this afternoon his eyes got really bad and red again and his behaviour deteriorated pretty quickly. How much of this is because we slipped up somewhere and how much is because the weekend was spent with his grandparents having attention lavished on him I don't know, but there were definitely tears before bedtime!

Tomorrow is another day, and one that we'll hopefully start to see signs of change.

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